Izithombe zikaDennis Fischer / Getty Izithombe
Kungenzeka ukuthi uke wasibona isifo sikashukela singena endabeni yomdlalo we-TV oyintandokazi noma ifilimu entsha ngezikhathi ezithile. Isimo sisetshenziswa kaningi njengomugqa we-punchline osheshayo noma i-one-liner, noma uhlobo lwefoyili ekhubeka izinhlamvu.
Lezi zithombe zibalulekile ngoba amafilimu nabezindaba banamandla okubumba imibono yomphakathi ngabantu abanesifo sikashukela (PWD). Amafilimu nabezindaba kungalolonga indlela abantu abasabela ngayo ezimeni ezithile eziphuthumayo, okuhlangenwe nakho kwezingane esikoleni kanye nokuhlangenwe nakho kwabantu abadala ezindaweni zokusebenza, kanye nendlela abantu abathatha ngayo izinqumo ezindabeni zenqubomgomo yezempilo.
Imidlalo edumile efana nokuthi “Uhlu Oluvinjelwe,” “Umthetho Nokuhleleka: I-SVU” kanye “Nomuntu Othakaselayo” zonke zihlanganise kafushane amaphampu e-insulin kanye nokugetshengwa kwemishini emigqeni yazo yezindaba — kodwa azikaze zisingathe kahle .
“Akekho othanda ukubona ingxenye yesifo sikashukela ivezwa ngendlela engafanele, kodwa ngicabanga ukuthi ingcono kakhulu emithonjeni yezindaba yanamuhla kunaseminyakeni edlule. Senze inqubekelaphambili enkulu futhi 'sesilungile' kakhulu kunalokho ebesiyikho,” kusho u-D-Dad, onezingane ezimbili ezikhulile ezinesifo sikashukela sohlobo loku-1 (T1D) futhi osekunesikhathi eside ekhuthaza ukumelwa kobufakazi besifo sikashukela kwabezindaba.
Uhlu lokuqukethwe
Ukuhlanekezela amanga ngesifo sikashukela kumabonakude
Ngokomlando, amamuvi kanye nethelevishini kuvame ukungakwenzi kahle lapho kubhekwa isifo sikashukela.
Nazi izibonelo ezigqamayo ochungechungeni lwe-TV:
- Isiqephu se-“Big Bang Theory” saxhumanisa isifo sikashukela neqembu labantu abakhuluphele aba-ode uphudingi, okuhlanganisa nomuntu okhubazekile onephampu ye-insulin.
- Esiqeshini esithi “Walking Dead”, umlingiswa oyedwa kuphela owalulama ngokushesha ngemva kokuthola umjovo we-insulin.
- Ochungechungeni lwesikhashana oluthi “Ungalimazi,” udokotela ohlinzayo one-T1D kwadingeka asulwe ukuze ahlinzwe ngokuhlola ushukela wakhe wegazi ngesithwebuli seminwe sesikhathi esizayo senguqulo yesibhedlela esilingana netafula.
- Endaweni ethi "Hannah Montana", umlingiswa wagconwa ngokungakwazi ukudla uswidi ngenxa ye-T1D yakhe. AbakwaDisney ekugcineni bakubukezile lokhu futhi ngemuva kwalokho badonsa isiqephu.
Ezinye izibonelo lapho abameli bebize amaphutha nolwazi olungaqondile ezinhlelweni zethelevishini zifaka phakathi okukhulunywe ngakho kaningana kumadrama ezokwelapha "" kanye "" ku-NBC, kanye nendatshana yokufinyeleleka kwe-insulin ebhalwe esiqeshini esihlukile se-"New Amsterdam" kanye "" ku-FOX.
Abanye baphinde babona kukhulunywa “nge-pancreas yokwenziwa” ku-April 28, 2021 isiqephu esisha se-ABC sitcom "," lapho umlingiswa ongumkhulu ekhuluma nabazukulu bakhe abancane endaweni yesigameko, kodwa kwakungekho nhlobo umongo wokukhulunywa ngesifo sikashukela. ubuchwepheshe.
Isifo sikashukela sibuhlungu kumamuvi
Esikrinini esikhulu, amaphutha abonakala ethatha indawo entsha.
"UHansel noGretel"
Isibonelo esimangalisayo sephutha elisobala yifilimu yango-2013 "," lapho umqondisi asebenzise khona "isifo sikashukela" endabeni yenganekwane.
Umlingisi ohamba phambili uJeremy Renner ulingisa uHansel, ophila "noshukela," ukufana okumangalisayo ne-T1D uHansel enza inkontileka ngemuva kokuthi umthakathi omubi emdlise uswidi esemncane. Ngenxa yawo wonke lo swidi, u-Hansel ukhula ngemijovo yansuku zonke enomsindo wewashi lakhe. Ngaphandle kwale mijovo, njengoba sibona ngesikhathi esisodwa kule filimu, uzoba nokuquleka ngokushesha - ngokusobala umphumela woshukela ophezulu wegazi?
Vele, into enkulu ethathwe kule movie ukuthi ukudla uswidi kuholela ku-T1D, okusobala ukuthi akunjalo. Amanye amalungu omphakathi athola ukuthi lo mdlalo uwuhlobo lokusabisa, kwase kulandela umkhankaso wonke wokukhuthaza owawuhlanganisa nokubhalela uthishanhloko izincwadi.
"Igumbi le-Panic"
Enye ifilimu evame ukukhonjwa ngokungalungile kanye nolwazi olungaqondile yifilimu yango-2002, edlalwa u-Jodie Foster noKristen Stewart.
Indaba igxile kumama ohlukanisile nendodakazi yakhe eyeve eshumini nambili, abacasha ekamelweni eliyimfihlo le-brownstone yabo ngemva kokuba abaphangi begqekeza endlini bezontshontsha ingcebo efihliwe. Indodakazi uSarah ine-T1D, futhi ngesinye isikhathi inoshukela osegazini ophansi ngesikhathi ivaleleke ekamelweni lokushaywa uvalo.
Kule filimu, osemusha "unethuba" le-hypoglycemia, abantu abakhubazekile abangayibona njenge. Kodwa-ke, abantu abaningi abangenalo ulwazi ngalesi sifo bangacabanga kalula ukuthi yi-insulin. Ngeshwa, abagxeki abaningi bamafilimu babize ngokungalungile lesi sithombe esisindisa impilo ngokuthi "umjovo we-insulin." Lokhu ngokusobala kunikeza umbono ongamanga oyingozi wokuthi umuntu onoshukela wegazi ophansi udinga i-insulin eyengeziwe esikhundleni sikashukela.
Kunjalo, osemusha uyalulama ngokushesha ngemva komjovo kunemizuzu embalwa ngokuvamile eyithatha ngemva kokusebenzisa iglucagon ephuthumayo. Ngesinye isikhathi, ababhali baze bathi uSarah waphenduka waba luhlaza okwesibhakabhaka - into engenzeki ngama-hypos. Kanti kwesinye isikhathi kule filimu ibhungu liyakhathazeka bese unina emxwayisa ngokuthi angacasuki ngoba lokho kungaholela ekutheni abe nesifo sikashukela.
“Awukho umthetho othi kufanele sibe neqiniso kuzo zonke izigcawu zefilimu,” kusho umeluleki wezokwelapha wefilimu, uDonna Cline. "Eqinisweni, siletha lokho okufunwa umphakathi."
UCline uthi wenze ucwaningo ngokubukeka nokuziphatha okuhlotshaniswa ne-hypoglycemia nezinye izici zesifo sikashukela. Waze wabonisana nezincwadi zokufunda futhi wafuna usizo kochwepheshe bokunakekelwa kwesifo sikashukela, ethola encwadini ye-cardiopulmonary resuscitation (CPR) ukuthi "ukucindezeleka okukhulu ngokomzwelo" kungaholela ekuguleni. Lokhu yikho okuholele ekutheni umama aphawule ngendodakazi yakhe ecasukile.
Okuthakazelisa nakakhulu ukuthi umkhiqizi we-"Panic Room" unendodakazi ene-T1D, kodwa nokho umbhalo ubukude nobuchwepheshe obunembile ezindaweni eziningi. Kodwa-ke, kungaphikiswana ngokuthi kukhuphule ukuphuthuma kwezimo eziphuthumayo zesifo sikashukela.
I(ama)muvi "I-Steel Magnolias"
Kukhona nesibonelo sakudala sefilimu yango-1989 ethi "," eyashaqisa isizukulwane esingaphezu kwesisodwa sabantu abakhubazekile nakuba yayisekelwe emdlalweni osuselwe endabeni yeqiniso.
Umlingiswa kaJulia Roberts uShelby uhlala ne-T1D futhi, naphezu kokukhathazeka kukanina nodokotela, uyakhulelwa, ebeka izinso nomzimba wakhe ubunzima. Isigcawu esiyingqopha-mlando esivela emphakathini wethu wakwa-D yilapho enoshukela ophansi ngenkathi enza izinwele zakhe zomshado, futhi umama wakhe usho umusho wakudala "Phuza ijusi yakho, Shelby!" njengoba umlingiswa kaRoberts ephikisana futhi ekhala ngokudideka kwakhe kwe-hypoglycemic.
Lesi sigameko sathinta abesifazane abaningi abanesifo sikashukela, ababecabanga ukuthi ngeke babe nezingane ngokuphepha. Nakuba lokhu kungenjalo ngokuqinisekile, kwakuwumbono ovamile wezokwelapha ngesikhathi sale filimu yasekuqaleni.
Indawo yejusi yayimangalisa futhi abaningi babecabanga ukuthi ayimeleli kahle isipiliyoni sabantu abakhubazekile. Kodwa-ke abanye abaningi babekhona futhi bahlanganisa nakho kwabo kwe-hypoglycemia. Ngakho-ke, ukunemba ngezinye izikhathi kusesandleni sombukeli.
Enguqulweni yango-2012 enabalingisi abasha, indaba ayishintshi kangako kweyokuqala kodwa inezibuyekezo ngamaselula kanye nobuchwepheshe besimanje besifo sikashukela obuvelayo. Kukhona inkhulumomphendvulwano ezama ukucacisa ingozi yokukhulelwa kwezinkinga nesifo sikashukela.
Yenza izinqumo ezifanele
Ngenhlanhla, kukhona futhi izibonelo lapho isifo sikashukela siqondiswa esikrinini ngezindlela ezinemiphumela emihle. Kubalulekile ukugqamisa lokho le midlalo ekwenze kahle.
“Ubufakazi”
Umdlalo we-ABC "" ubonise indaba lapho indodakazi yomlingiswa oyinhloko yatholakala ine-T1D futhi yasebenzisa iphampu ye-insulin ye-Medtronic Minimed. Umlingisi kwakunguMary Mouser, ohlala ne-T1D uqobo (futhi uqhubekile nokudlala indima njengendodakazi kaDaniel LaRusso ochungechungeni lweNetflix uCobra Kai).
Ekupheleni kwalesi siqephu, kwasakazwa umyalezo oyimizuzwana eyi-10 owazisa ababukeli ukuthi nsuku zonke, izingane nabantu abadala abangu-80 batholakala bene-T1D futhi ubamema ukuthi bathinte i-JDRF ukuze bathole ulwazi olwengeziwe. Le nhlangano inxusa umphakathi ukuthi lesi siqephu usiveze ngokunembayo imininingwane yezokwelashwa, kanye nemizwa nokwesaba imindeni eminingi ebhekana nakho ngezikhathi zokuxilongwa.
I-JDRF itshele i-DiabetesMine ukuthi nakuba ingakhulumi ngaso sonke isikhathi ngokuqhubekayo nabezindaba mayelana nokuvezwa kwesifo sikashukela, inhlangano ihlale izimisele ukusebenzisana nabadidiyeli bethelevishini nabakhi bamafilimu ababathintayo ukuze bafunde kabanzi nge-T1D. Yilokhu okwenzeka ngohlelo oluthi “Body of Proof”.
I-Medtronic ikuqinisekisile ukuthi nabo babeyingxenye yalo mbukiso, behlinzeka ngolwazi futhi beboleka abasebenzi i-Medtronic futha yomlingisi we-Mouser.
“Sicabange ukuthi benze umsebenzi omuhle ngokuthwebula esikrinini eminye yemizwa etholwa imindeni eminingi enesifo sikashukela. Futhi basivumela ukuthi sithumele ilungu lethimba lethu lomtholampilo esitudiyo ukuze likwazi ukubasiza baqinisekise ukuthi iphampu iboniswa ngendlela engokoqobo,” kusho lowo owayengumkhulumeli we-Medtronic etshela i-DiabetesMine. UKarrie Hawbaker.
"I-Amsterdam Entsha" ku-NBC
Isiqephu sango-2019 esithi “New Amsterdam” sibhekane nenkinga yokukwazi ukuthengeka kwe-insulin emugqeni wendaba ogxile emananini ezidakamizwa kanye necala lezemithi. Kwase kuthi esinye isiqephu ngoMashi 2021 umama womlingiswa oyinhloko edonsa kanzima ngejika lokufunda ngemuva kokuxilongwa okusha - efunda ukunikeza imijovo ye-insulin nokubala imithamo yokudla.
Ngokuhlaba umxhwele, umlingisi oyinhloko wombukiso, uMax odlalwa nguRyan Eggold, wakhuluma naye mayelana nezikhathi zokuxilongwa kokuqala, echaza izinto eziyisisekelo zokujova i-insulin ngesirinji ngisho nokubala ama-carbohydrate ukuze kudoswe.
Nokho inaliti esetshenziselwa ukukhombisa yayiyi-HUGE...iphuzu abaningi emphakathini wesiguli abaye baligxeka njengelingalungile.
Uma sithatha isinyathelo emuva kulokho abaningi bethu abakwaziyo ukuthi kuyiqiniso mayelana nosayizi besirinji besimanje, kubalulekile ukuqaphela ukuthi abantu abadala abaningi abasanda kutholwa babona imijovo ye-insulin njengemikhulu futhi iyesabeka.
Esinye sezizathu okungenzeka ukuthi lezi zigcawu ze-“New Amsterdam” zisho isifo sikashukela ukuthi, u-D-Mom waseNew York okungenzeka abe umhlengikazi ohleliwe wemidlalo yama-movie nemidlalo ye-TV. Uyi-Diabetes Care and Education Specialist (DCES) indodana yakhe eyatholwa ine-T1D ngasekupheleni kweminyaka yama-90s, futhi usize ekubuyekezeni imibhalo ukuze aqinisekise ukuthi inembile ngokwezokwelapha mayelana nesifo sikashukela.
Indodana yakhe endala nayo ibambe iqhaza ngemuva kwemidlalo eshisa izikhotha efana nethi "Blue Bloods" kanye "noMnu. Robot,” khona-ke isipiliyoni sabo somuntu siqu esikabili nge-T1D ngokungangabazeki singenza umehluko uma kubaluleke kakhulu.
Ukusebenza neziguli zangempela nochwepheshe bezokwelapha kwenza umehluko uma kuziwa ekuvezeni ngokunembile noma yisiphi isimo sezempilo esikrinini.
"I-Babysitter Club" ku-Netflix
Ngo-2020, lolu chungechunge lwethelevishini luthathelwe ochungechungeni lwezincwadi zezingane zakudala kusukela ngeminyaka yawo-1980. Esiqeshini sesithathu sokusakaza-bukhoma, umlingisi oyinhloko osemusha u-Stacey McGill ufihla isifo sikashukela kubangani bakhe ngangokunokwenzeka, kuze kube 'kuze kube yilapho sithola ukuthi usanda kuthola isifo sikashukela. I-T1D.
Abakhiqizi benze umsebenzi ohloniphekile, bebonisa osemusha egwema ngobuqili ukudla okunamaswidi nokudla okune-carb eningi phambi kwabangane, ukuze kungadingeki ukuthi "adose i-insulin ngepompo yakhe." Bese kuthi indaba ibe sezinkundleni zokuxhumana iveze ukuthi intombazane yashiya esikoleni sangaphambilini ngenxa yokuquleka ngaphambi nje kokuxilongwa kwayo kwe-T1D, okwabangela ukukhathazeka kwamanye abazali bamantombazane. Eqinisweni, kwesinye isenzakalo, abazali baxoxa ngokungabaza kwabo mayelana nesifo sikashukela sika-Stacey kanye nokuba phakathi kwakhe nezingane zabo.
Ngisho noma inkinga yangaphambi kwe-T1D nokuhlangana kwabazali kungase kubonakale kuyinto encane, abakhiqizi bagxile ekuboniseni imizwa ka-Stacy nendlela asisingatha ngayo isimo sakhe phakathi kwabanye. Ngalo mqondo, benze umsebenzi omuhle kakhulu. Lesi siqephu sibambelele empilweni yezingane eziningi nentsha enesifo sikashukela.
Kukhuluma umdidiyeli wesikrini
UChris ehleka
Ngo-2020, ifilimu engelona iqiniso ye-apocalyptic "Greenland" yayinomlingisi oyinhloko one-T1D.
Umdidiyeli wesikrini waziwa kakhulu emphakathini wesifo sikashukela njengomyeni wommeli nombhali we-T1D osenesikhathi eside.
Le filimu ikhuluma ngama-meteors aphahlazeka eMhlabeni futhi okungenzeka aqothule ubukhona bomuntu, futhi abantu kufanele babhukule ukuze bagweme le apocalypse, ngokwengxenye baye eGreenland, lapho belindelwe khona.
U-Sparling wayenendodana yomlingisi oyinhloko ehlushwa i-T1D, engeze enye indaba ephuthumayo phezu kwesakhiwo esikhulu.
Uthi wazama ukuhlala ngokweqiniso ku-T1D ekhasini njengombhali, kodwa ukukhiqizwa kokugcina kwakungaphezu kwamandla akhe ngoba akazange asebenze njengomqondisi noma umdidiyeli.
Uthi uzizwa enesibopho esiqinile, nakuba kungelula ngaso sonke isikhathi njengoba abanye becabanga “ukukulungisa” uma kuziwa ekuboniseni isifo sikashukela esikrinini.
“Kukhona ukwehluleka okusobala nezinto ezicasula ngamabomu. Kodwa ukushiya lezo zinto eceleni… umgomo wesinema uwukukhombisa, ungasho,” kusho uSparling ekhuluma ne-Children with Diabetes. “Awufuni abantu bavele bakhulume ngento ethile, ufuna ukuyikhombisa, bayidlale. Isifo sikashukela yisifo esinzima ukuseniswa. »
Uveza ukuthi kuhlale kunengcuphe yokweqiwa kwemizwa okugcine kunganembile.
“Unesibopho,” kusho uSparling, ngakho uhlale ezibuza, “Ngingakubonisa kanjani ngendlela enikeza isisindo esiwufanele, kodwa futhi enezele ukucaciseleka ezilalelini?” »
kungani kubalulekile
U-Tom Karlya, umzali wama-T1D amabili obambe iqhaza ekukhulumeni kwesifo sikashukela kwabezindaba namafilimu, usikhumbuza ukuthi konke okukhulunywa ngakho ngesifo sikashukela kule mithombo yezindaba kubalwa. Ngempela, ulwazi olunganembile oluyingozi lungatholakala ezimweni ezingokoqobo. Futhi ukucwaswa okungekuhle kungavimbela abantu ukuthi banikele ocwaningweni olubucayi lwesifo sikashukela, isibonelo.
UTom Karlya
“Kwesinye isikhathi ngiyaye ngizibuze ukuthi ngabe ilayisense yobuciko yokwenza izinto isolise idlula ukuthi into okumele ibe yiqiniso ngamaphesenti ayi-100,” usho kanje.
“Futhi njengomphakathi, ingabe silungile ngokuthile okungalungile, ngelayisense yobuciko, inqobo nje uma kungalungile ngokuphelele noma kusetshenziswe ngokweqile?”
Lona umbuzo umphakathi wethu wesifo sikashukela owuvakashela kaningi, njengoba kuvela izimo ezintsha.
Ugqamisa impikiswano, lapho umlingisi nomculi (i-T1D ngokwakhe) enze indawo engamasekhondi angama-30 ohlelweni lokuqapha ushukela oluqhubekayo (CGM). Nakuba abanye besigxekile isikhangiso - izigidi zamarandi ezichithwe esimweni sokuthi lobu buchwepheshe bungase bungabizi kanjani kwabanye abantu, kanye nendlela obucwasa ngayo iminwe - uKarlya ubonisa ukuqaphela ukuthi ulethe ekusebenziseni i-T1D ne-CGM. ngenjwayelo.
Uthi: “Ngezinye izikhathi ngiba nomuzwa wokuthi asikaze sijabule kungakhathaliseki ukuthi sitholani.
U-Karlya ucabanga ukuthi kubalulekile ukuthi abameli bamalungelo abantu baxhumane nabezindaba, ababhali, abakhiqizi bamafilimu lapho belwa nesifo sikashukela, njengoba nje benza iphutha.
“Ngiyayithanda indlela esibabona ngayo beletha abantu abanolwazi lomuntu siqu ukuze baqondise ukubhala noma bahlanganyele ekuhlolweni kwezokwelapha ukuze baqiniseke ukuthi isithombe sinembile,” kusho uKarlya.
“Kwesinye isikhathi kufanele wehlise umonakalo…ukuwulungisa,” usho kanje.